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Lifers' Cancer Updates - Further update from Redmidland (p73)

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  • @Peter_G, I'm sorry to hear you have a UTI they are really nasty and can affect every part of your life. I hope you get over it soon mate and can get to Wembley.
    However, your grandson and his dad are travelling from Hinckley? Is that the one in Leicestershire? If so, that's where I live!! Abd have done for the last 18 years!
    Stay safe my friend and enjoy the day!

    Thanks Red. They’ve been URTIs (upper respiratory tract) rather than urinary. So bad coughs and colds, but this last one is by far the worst I’ve ever had and has really messed with my breathing. I guess the kidney / cancer surgery may have left me a bit vulnerable.

    Yes, my son moved to Hinckley Leics about 20 years ago, and my grandson was born in Coventry Hospital in 2012 and has lived in Hinckley ever since. I knew that’s where you were from when I was given your address for your birthday cards. I went up to Hinckley in Feb on the weekend before my operation, and we had a couple of pints in The Wharf pub, before 8 of us enjoyed an excellent curry in the restaurant next door.

    Very best wishes. 
  • update with mum 

    had 1st session of brachy and a lot better than she thought. 

    didnt realise we wont get results until 3 months after the last session of brachy as radiation can continue working for that period. 

    shes happy and back to herself atm, a blessing is myself and the mrs bought her out a few years back so she still live with us the plan was for her to retire next year and then move down the coast broadstairs way to be near her sister, hopefully that plan is back on as i have belief that this treatment may of reduced the cancer her oncology doctor is positive thats all we can hope for. 

    edit - i hope everyone with or without this awful disease is ok its been an eye opener to me and the nhs do a fantastic job, mcmillan since the 1st 2 weeks have been useless i must add. 
    Good to hear some positive news PH, glad mum seems to be responding to treatment. Keep going in the right direction and she will be in Broadstairs in no time. 

    Take good care of yourself as well mate 👍🏻
  • Glad to hear there's some good news this week. Fingers crossed the radiation does the trick, and continues not to cause too many side effects.
  • Interested in your comment about McMillan. That was exactly my experience both with my wife last year, and my own treatment in February. For my wife, they were at her bedside at the beginning of her hospitalisation, then we hardly saw them during the next couple of months, and never at all when she came home for palliative care. St Christopher’s Hospice were much more supportive with regular visits to us and a whole year of counselling for our daughter after my wife’s death.
    For me, there was a McMillan nurse assigned to me at the start of my treatment and I had one very useful phone conversation about what to expect with the surgery, but that was it. No appearance at the hospital or since.

  • I am surprised by the above comments on McMillan nurses. Mine have been excellent. Honest, caring and responsive. In fact good service from my doctors at Darent Valley and KIngs, oncologist (and his department), and chemo nurses and support staff at Darent Valley. 
  • Possibly a case of if you don’t ask you don’t get & they assume their help is not needed?
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  • Thank you for the update PH.
    Much love to you and your Mum ♥️
  • So sorry to hear you are facing more issues with your health. 

    Please keep us updated & meanwhile am sending you strength & love. x
  • Best wishes to you Peter_G.
  • edited June 8
    Peter_G said:
    An update on “the condition my condition” is in: the removal of my cancerous kidney in February was successful, pending a further CT scan in 12 days time. I was going along nicely until April when I caught a bad viral chest infection. My heart seems to have been unable to cope with that; I got fluid in my lungs and breathing became very difficult. My GP prescribed a diuretic to get excess fluids out of my body and out of my lungs. Last Sunday I became quite ill with the breathlessness and other symptoms and I was admitted by my local A&E.
    The diuretic was putting excess strain on my remaining kidney so the hospital put me on a drip to restore fluids and rehydrate my kidney. The next day, the senior consultant told me that getting the fluids out of my lungs was the no 1 priority so she took me off the drip and said that a careful balance would have to be found whereby I could continue with the diuretics. I was given an intravenous dose of diuretic and discharged (I was feeling better, despite everything). I am now being treated via the “hospital at home” service and have been getting doctors and nurses visiting.
    My kidney function is not quite where it should be and my doctor has consulted today with my kidney surgeon and they have agreed to continue with the diuretic and do another kidney function blood test on Monday.
    Underlying all this is what happened with my heart; the hospital have described it as a ‘heart failure’ and they are arranging an echo cardiogram for which I await a date.
    This is clearly the biggest elephant in the room but the medics have stressed the importance of getting my lungs cleared.
    At least I was just about well enough to get to the playoff semi and the final at Wembley.
    What a carry on ……
    It seems that the medical people are on top of the situation.

    Hopefully this will ensure your health moves forward quickly.

    Take care.
  • Peter_G said:
    Came into hospital as an outpatient at 3.45 this afternoon for my echocardiogram. As soon as it was done the cardiologist told me she was calling for a doctor immediately; my heart is “seriously impaired” apparently. The doctor had me admitted to a cardiology ward at 4.45 and I am now wired cup to an ECG machine.
    At least I got admitted in time for supper!

    Best of luck. I hope the food is ok but mainly that you get a good night's sleep, which in my experience is almost impossible in hospital.

  • edited June 11
    Best wishes Peter_G
  • Crikey PG! At least you’re in the best place.
    Keep us posted.
    All my love to you ♥️
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  • Good luck PG.  Hope you get all the help and assistance you need and are back out at the soonest.
  • Best wishes @Peter_G
  • Thinking of you tonight, PG & sending love your way x 
  • Sending you best wishes @Peter_G, and hoping the medics soon find a solution for your cardio problem.
  • Best wishes @Peter_G
  • I LoL'd your post as the last line  made me chuckle, take care and get better
  • best wishes Peter_G.
  • All the best @Peter_G. I know from personal experience that it is amazing what they can do. A heart  in 2013 and three procedures later I’m still here and belting along.  Do what they tell you and try not to worry too much. 
  • edited June 15
    Peter_G said:
    Came into hospital as an outpatient at 3.45 this afternoon for my echocardiogram. As soon as it was done the cardiologist told me she was calling for a doctor immediately; my heart is “seriously impaired” apparently. The doctor had me admitted to a cardiology ward at 4.45 and I am now wired cup to an ECG machine.
    At least I got admitted in time for supper!


    It seems that these guys are 'on the ball'.
    I was at Kings for my bypass and they were a well oiled machine, and I was happy/relieved to be in safe hands.
    Am not sure you should be looking forward to hospital food though :)
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