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Our little boy Archie - cafc_se7 running a half marathon for charity (p4)
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Signed and letter sent. Wishing all the best for Archie and family. x1
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Signed
I'll pass it onto my contacts and also NHS pressure groups on Twitter.
Be interesting to see how many MPs have interests in Vertex from either side of the House.
The good new is you have 3 to 6 years to turn th8s horrible decision around and possibly a more sympathetic Government from 2025.4 -
Signed. Best wishes Archie and your quest to allow him to have the best treatment available to him.1
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Bolderhumphreyreid said:Done and it took literally 20 seconds.1
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Signed and sent, best of luck to you and your family.1
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Done! Best of luck mate.1
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Done and shared1
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Signed hope the best for you and yours1
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Signed.1
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Signed1
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Signed and good luck to you and your wife, and of course Archie.
My sister in law passed away in 2000 aged 32, with cystic fibrosis.
Wishing you all the best.
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Happy to sign, and all the best to you and little Archie
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Done. All the very best to Archie and family.1
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Signed0
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Signed and letter/email sent
it’s not the government setting the extortionate price , the American pharmaceutical firm who make it do .
im sure the government would love to be able to give the go ahead and let everyone receive the treatment but it has to be funded somehow .
Of course the pharma firm have to make money and cover all the time spent developing/attemptin to develop these treatments but they also have to get somewhere within the bounds of reasonability3 -
all done and shared, best of luck to you all0
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Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
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All signed. All the best Archie thinking of you little man.🙏🙏💙💙0
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Braziliance said:Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?1 -
cafc_se7 said:Braziliance said:Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
Again all the best mate and I really wish you all well0 -
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Done1
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Braziliance said:cafc_se7 said:Braziliance said:Signed both mate, good luck to yourself, Nicky and your beautiful baby Archie.
If there's a donation page or anything like that I'd be more than happy to donate.
It's not much but I'll share it on my twitter page as there may be Charlton fans on there who haven't seen this and I'll mention it in my next video at Portsmouth to hopefully get a few more names signed up maybe if you don't mind?
All the best again
Edit: do you mind me sharing this on my twitter page before I post?
Again all the best mate and I really wish you all well0 -
Signed ita nd sent the letter. All the best to Archie and your family.0
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Signed and shared on Facebook.
I hope Archie gets the treatment he needs, he is a smashing looking lad and that price is an utter piss take by the drugs company.
Thanks to @Braziliance for reminding me of this thread in his blog.1 -
Signed. All the best to you.0
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Signed. Best wishes to Archie. Stay strong.0
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Signed, Hope it makes a positive difference .0
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Signed this, wishing you and Archie all the best mate.0
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Thank you so much @Braziliance for keeping to your word and mentioning Archie and our story at the end of your video! Hopefully will go a long way to getting some more numbers signed up on the petition!I was there Saturday down the front. Next away day I will most definitely be buying you a beer (Orient - Boxing Day).Great video too!PS hope your back gets better soon! 👍🏼4
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Done - best of luck to Archie and your family1