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Our little boy Archie - cafc_se7 running a half marathon for charity (p4)

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Comments

  • KBslittlesis
    KBslittlesis Posts: 8,619
    Wonderful news ♥️
  • Wow, what fantastic news!
  • Rob
    Rob Posts: 11,808
    That is so great. You must feel amazing! Well done. 
  • LordDofB
    LordDofB Posts: 205
    Great news!
  • Addick Addict
    Addick Addict Posts: 39,820
    That really is fantastic news. 
  • Fanny Fanackapan
    Fanny Fanackapan Posts: 18,740
    Brilliant news ! 

    The good old NHS comes up trumps again ! 
  • soapy_jones
    soapy_jones Posts: 21,362
    edited June 2024
    Some good news!

    Superb!
  • T_C_E
    T_C_E Posts: 16,421
    So pleased for you all 💪
  • Rizzo
    Rizzo Posts: 6,435
    Fantastic news!

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  • usetobunkin
    usetobunkin Posts: 2,189
    Hope the little chap is doing well.
  • Valley Ant
    Valley Ant Posts: 468
    So pleased for you, your family and all who will benefit from this decision.
    What a beautiful photo of Archie. He has a lovely smile.
  • usetobunkin
    usetobunkin Posts: 2,189
    edited June 2024
    cafc_se7 said:
    usetobunkin said:
    Hope the little chap is doing well.
    He’s doing especially well now he is allowed to stay up to cheer on the boys in a bit 👍🏼 👍🏼 
    A Bobby Dazzler if I ever saw one!
  • KBslittlesis
    KBslittlesis Posts: 8,619
    Oh Archie!
    You absolute superstar 🤩🥰❤️
  • cherryorchard
    cherryorchard Posts: 1,722
    Great news. Signing a petition to help Archie and others was our pleasure.
  • aliwibble
    aliwibble Posts: 26,305
    Aww, what a cutie. Really pleased for you cafc_se7
  • NornIrishAddick
    NornIrishAddick Posts: 9,623
    Speaking for myself, you should feel free to take a bow, instead of thanking us, without yourself and others affected taking up the fight, nothing would have happened.
  • se9addick
    se9addick Posts: 32,056
    Great news, hope Archie enjoys the Euros in his England kit!  
  • cafc_se7
    cafc_se7 Posts: 2,277
    Good Evening All,

    On the back of the incredible news which the family received regarding the drug for our son Archie, which has been permanently approved on the NHS in the UK, I wanted to do a good deed. I would like to raise money and awareness to support the endless, fantastic work which the Cystic Fibrosis Trust does to support patients and closely affected family members who live with this condition.

    Therefore I am running the London Royal Parks Half Marathon on the 13th October.

    Any small contribution which you can donate would be greatly appreciated by firstly myself and secondly all of my family. The JustGiving link is at the bottom of this email.

    I would like to take this opportunity once again to thank all of you who have given me overwhelming support and kind words since I broke the news. I really am forever grateful to all of you!

    Hopefully speak to you all soon!