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cafcnick1992 said:I've just spent a night in Bruges and it really has surpassed expectations. So clean and feels so safe.3
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cafcnick1992 said:I've just spent a night in Bruges and it really has surpassed expectations. So clean and feels so safe.0
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Yea lovely place, certainly beats Brussels that's for sure.1
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Still working their magic on the new intake of children at school……..
“Do you take the dogs around to see the reception classes? My Chloe loves dogs and shes really struggling with going into school in the mornings, this my encouragement her to want to go.
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Scotch eggs.0
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Macronate said:Scotch eggs.0
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Some twat collided with my wife's car back in 2021, and refused to take the blame
Went all the way to Court today (My wife won), because the idiot changed their story, in an attempt to pin the full blame on her - Trouble when you fib, is the fact that it becomes difficult to stick your original statement, and is what cost him9 -
The news of a breakthrough with Huntingdon's Disease. Not that it directly affects anyone I know (at least, that I know of), but it was the first time in ages that the opening news headline was a positive story rather than just doom and gloom.
https://www.bbc.co.uk/news/articles/c24r666ly3vo
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Stig said:The news of a breakthrough with Huntingdon's Disease. Not that it directly affects anyone I know (at least, that I know of), but it was the first time in ages that the opening news headline was a positive story rather than just doom and gloom.
https://www.bbc.co.uk/news/articles/c24r666ly3vo0 -
Stig said:The news of a breakthrough with Huntingdon's Disease. Not that it directly affects anyone I know (at least, that I know of), but it was the first time in ages that the opening news headline was a positive story rather than just doom and gloom.
https://www.bbc.co.uk/news/articles/c24r666ly3vo
Who choses who gets it?0 - Sponsored links:
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Stig said:The news of a breakthrough with Huntingdon's Disease. Not that it directly affects anyone I know (at least, that I know of), but it was the first time in ages that the opening news headline was a positive story rather than just doom and gloom.
https://www.bbc.co.uk/news/articles/c24r666ly3vo1 -
usetobunkin said:Stig said:The news of a breakthrough with Huntingdon's Disease. Not that it directly affects anyone I know (at least, that I know of), but it was the first time in ages that the opening news headline was a positive story rather than just doom and gloom.
https://www.bbc.co.uk/news/articles/c24r666ly3vo
Who choses who gets it?
New breakthrough technologies cost loads to begin with because of the cost of researching them, the niche tech/ equipment/ expertise/ experience needed for it. Over time the skills base grows, technology develops and it be ones both cheaper and more widely available. This is not the end point for the treatment nor the cost of it.
In this instance for a disease that previously guaranteed an early death and massive loss of quality of life for decades leading up to it, there is now a treatment that works. And in 10 years time with continued development I am sure it will be much more widely available. That alone give massive hope to sufferers and their families. Or even just people who's family carry the recessive gene that causes it and therefore don't know if the disease with appear in one of their family members.
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